从进口依赖到本土创新,复星医药推动罕见病药物研发新突破

21世纪经济报道
Jun 13, 2025

“我们不是在乞求药物,而是在等待一个合理的解决方案。”在与罕见病患者沟通时,这样的声音反复响起。这也是由于,这个世界上存在一些疾病,它们不仅鲜为人知,甚至连大多数普通人都未曾耳闻,即便是医生,一生中也难得遇到几例,它们被统称为“罕见病”。由于罕见病患者数量稀少,导致治疗药物研发成本难以分摊,这可能是罕见病治疗药物年费用高昂,相当于普通家庭数十年收入的原因。根据最新数据,我国约有2000万罕见病患者...

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