每到2月28日,“每一个群体都不应该被放弃”就会成为一年一度“国际罕见病日”的热议话题,到今年更成为罕见病防治的重要理念。中国获批上市的罕见病药物越来越多,全国罕见病诊疗协作网截至去年9月已扩展到419家医院,药品可及性则通过医院、零售药店、线上平台等多渠道满足患者需求。罕见病患者群体正得到越来越多的社会关注。未来,产业界还能做点什么?在健识局主办的“‘有药’更‘有依’——从药品供给到全周期守护,...
Source Link每到2月28日,“每一个群体都不应该被放弃”就会成为一年一度“国际罕见病日”的热议话题,到今年更成为罕见病防治的重要理念。中国获批上市的罕见病药物越来越多,全国罕见病诊疗协作网截至去年9月已扩展到419家医院,药品可及性则通过医院、零售药店、线上平台等多渠道满足患者需求。罕见病患者群体正得到越来越多的社会关注。未来,产业界还能做点什么?在健识局主办的“‘有药’更‘有依’——从药品供给到全周期守护,...
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